Il existe bien une assez grosse communauté autour de ce traitement toujours en phase d'expérimentation. J'ai pu déduire après la lecture des échanges entre membres de ce groupe que ce traitement n'est pas pratiqué de la même manière dans le monde entier, rien n'est certains, rien n'est clairement établi.
On parle bien d'arrêt de la progression de la maladie et pas de rémission (on ne sait pas encore si cela peut durer dans le temps)
Cela ne fonctionne pas pour tout le monde
Le mieux est d'aller consulter les pages des ces membres, qui (à mon avis) ne font pas partie d'une "secte"
Ensuite, pour avoir plus d'info, il faut en parler à votre médécin...
Désolé pour la langue anglaise, google traduction vous aidera à mieux comprendre.
Blogs/Websites of members
Par Sean Haight, mercredi 18 avril 2012, 22:03
CIDP
Susan Dean (CIDP Moscow)
http://hsctforcidpnmsnad.blogspot.fr/
Gro Larsen (CIDP, Moscow)
http://grolarsen64.blogspot.no/
Jamie Stewart (CIDP, Moscow)
http://www.jstew34.tumblr.com
Michael Childs (Chicago- CIDP)
Alice Dicroce (CIDP Chicago 2009)
http://ad0237.tripod.com/
Bryan-Ann Hinkle (CIDP, Chicago)
http://www.bryanhinklesct.blogspot.com/
Wendy Nash (CIDP at Northwestern University, Chicago)
http://mymedicalmiracle.blogspot.com/
Andrew Price (Chicago for CIDP)
http://www.shakesandstones.blogspot.com
Benoy Thomas Rajan (CIDP, Chicago)
http://www.btrinchicago.blogspot.com/
Devics NMO
Kassandra Rockhold (Mikal Heintz mother) Devics NMO (chicago) 2015
https://kassbeatsnmo.wordpress.com/
Multiple Sclerosis
Lucy Clarke (Australia)
http://www.todaytonightadelaide.com.au/ ... -stem-cell
Carmel Turner (Australia)
http://www.msstemcell.com/
Billy-Bob Junior (Belgium)
https://billybobjunior.wordpress.com/
Chris McGuey (Ottawa, Canada)
http://my-end-to-ms.blogspot.com/
Toni Brennan (Heidelberg University Hospital, Heidelberg, Germany)
http://tonibrennan.wordpress.com/
George Goss (Heidelberg University Hospital, Heidelberg, Germany)
http://themscure.blogspot.com/2009/11/i ... oyage.html
Karina Grunwald (Heidelberg University Hospital, Heidelberg, Germany)
http://healingreen.blogspot.com/
Min Beattie (India)
http://aca.ninemsn.com.au/article.aspx?id=8605305
Geoeffry DB (Manipal Hospital, Bangalore, India)
https://www.facebook.com/groups/113034538879355/
Shelley Hoffpauir (Manipal Hospital, Bangalore, India)
https://www.facebook.com/groups/495592957120300/
Jerry Marting (India)
http://www.jerrymarting.com/200366156
Martin Melly (India)
http://mymshero.com/
Active Facebook forum with more detailed upates
https://www.facebook.com/groups/6900466 ... ion=stream
Claire Gittins Parry (Manipal Hospital, Bangalore, India)
http://www.clairetoindia.co.uk/
Blog
http://hsctinbangalore.blogspot.com/
Facebook Group
https://www.facebook.com/groups/clairetoindia/
Labour of love for the seven-marathon man
http://www.standard.co.uk/news/london/l ... 38938.html
Emily Reints
http://emilyvsms.wordpress.com/
Tina Sten (Manipal Hospital, Bangalore, India)
http://tinasten.wix.com/pleasehelptina#!home/mainPage
Alissa Lindley Wilson (Manipal Hospital, Bangalore, India)
https://www.facebook.com/groups/184547661595206/
Kristin Campbell (CTCI, Tel Aviv Israel)
http://kristinhsct.blogspot.com
Jorunn Andersen Hustveit (Israel)
http://msstemcell.blogspot.co.il/?view=classic#!/
Melissa Mann Scholz (CTCI, Tel Aviv, Israel)
http://rausausderms.wordpress.com/about-me/
Heidi Strauss (CTCI, Tel Aviv, Israel)
http://www.caringbridge.org/visit/heidistrauss
Cindy Don Bisagno (Florence, Italy)
http://cindyfightsms.tumblr.com/
Judi Bremer (Moscow)
judisjourneyofhope.blogspot.com
Stevie Holt (PPMS, Moscow)
http://www.ms-jog-on.over-blog.com/
Colleen Riley Hughes (Moscow)
http://crileyhughes.wordpress.com/
Tammy Kazen-Richert (Moscow)
http://tamstopms.wordpress.com/
Gala Kuper (Moscow)
http://torussiawithhope.wordpress.com/type/aside/
Keith Moore (Moscow)
http://hsctinrussia.weebly.com/index.html
Aaron O'Halloran (PPMS Moscow)
http://aaronattacksms.com
Natalie Pacaud (Moscow)
http://bestrongbebravebeyou.blogspot.co ... mment-form
Amy Peterson (Moscow)
http://amygoesninja.wordpress.com/
Jeff Root (Moscow)
http://rootingoutms.wordpress.com/
Lorraine Saipe (Moscow)
http://www.torussiawithloz.org/
Facebook page
https://www.facebook.com/www.torussiawi ... ion=stream
Phoebe Scopes (Moscow)
http://hsctmsandme.weebly.com/about-me.html
Brooke Slick (Moscow)
http://msslickdotcom.wordpress.com/
Article featuring Brook and her HSCT treatment choice: To Russia with faith; New Enterprise woman seeks medical procedure abroad with hopes it will halt her multiple sclerosis
http://www.altoonamirror.com/page/conte ... ml?nav=738
Russia MS Treatment Successful
http://wearecentralpa.com/fulltext-heal ... _id=466672
Sheli Godbold Smith (Moscow)
http://kissmsgoodbye.wordpress.com/
Lisa Stallings (PPMS, Moscow)
http://fromrussiawithlisa.wordpress.com/
Vicki Taylor Wilson (PPMS, Moscow)
http://kickinms.com/
Bernard Cronjé (University of Cape Town Hospital, Cape Town, South Africa)
http://bjcronje.wordpress.com/
Elin Maageng Jakobsen (Karolinska University Hospital, Stockholm, Sweden)
http://www.mindevenmore.com/
Christopher Martinsson (Akademiska sjukhuset, Uppsala, Sweden)
Hannah Vesterager (Karolinska University Hospital, Stockholm, Sweden)
http://www.hannastamceller.blogg.no/
Marc Coppins and Barb Yoder Coppins (Chicago)
http://www.MarcStemCell.com
Lisa Vargas Curtis (Chicago)
http://lisashope.com/lisa-story.html
Al Escudero (Chicago)
http://www.caringbridge.org/visit/alescudero
Procedure: Non-myeloablative AHSCT - Cyclophosphamide and rATG)
Date of AHSCT: 8/22/11
Lead Dr.: Dr. Burt
Facility: Northwestern Memorial Hospital. Chicago, ILL (USA)
Kevin Grace (Chicago)
http://www.kmg-stemthetide.blogspot.com ... chive.html
Monique Leventer (Chicago)
https://www.facebook.com/groups/525906880800629/
Tiffany Lilly (Chicago)
https://www.facebook.com/groups/214657901943901/
Chad O`Dell (CIDP/MS Chicago)
http://chadshsctjourney
Nico Pecht (MS, Chicago)
http://gpecht.blogspot.com
Chad Pfefer (Chicago)
http://www.caringbridge.org/visit/chadpfefer
Karen Stamen (MS Chicago)
http://www.karenstaman.com/wordpress/
Brian Tilaro (Chicago, IL.)
Date of HSCT Infusion: July 17, 2007
http://www.allyoumed.com/
http://www.facebook.com/brian.tilaro
Dave Bexfield (Fred Hutchinson Cancer Research Center, HALT-MS trial, Seattle)
http://activemsers.wssnoc.net/forumdisplay.php?f=6
Rachel Carter (FHCRC, Seattle, USA)
http://multiplesclerosismotivates.wordpress.com/
Sandi Selvi (San Diego)
http://www.sandiselvi.com
Systematic Sclerosis (Scleroderma)
Holly Hauser (HSCT for Systemic Sclerosis (Scleroderma) in Chicago)
http://holly-kfs.blogspot.com/
